Kayla was first diagnosed with Osteosarcoma in November of 2006 at the age of 9. We moved from our home in Fairbanks, Alaska to Seattle so she could receive treatment at Seattle Children’s Hospital. For 18 months she endured many rounds of chemo, countless transfusions, and 3 major surgeries.
When we came back home in April of 2008 we were ready to move on and put cancer behind us. We were able to do that until March of 2012, when at the age of 15 we heard the words no parent or cancer patient ever wants to hear, “There is a spot in her lung that we need to take a closer look at.” After removal it was confirmed that her sarcoma had returned. For Kayla, the only treatment was removal of the tumor because she had already received the chemo they give on recurrence. After talking to her oncology team at Children’s and knowing what statistics say once sarcoma returns we asked if there were any other options, and we were referred to a study at the Seattle Cancer Care Alliance.
Kayla is now in her last month on that study at SCCA. If she is receiving the study drug Saracatinib, and we sure hope she is, it shows promise of blocking the protein that allows sarcoma to grow in her lungs. We have no way to know for sure if she is receiving it, but what we do know is that her chest CT’s over the last 9 months have been clean. So we wait, for every 3 month appointment to come and go, and hope and pray that we continue to hear “scans are clean!” I pray we can one day leave this game of chance and that Kayla can live a long and healthy life.